Cameran's Infantile Spasms

Wednesday, June 20, 2007

Coming soon!

myspace layouts, myspace codes, glitter graphics
Camerans 6 month review and 1 more group of pics from our vacation! Gosh that whole thing is taking longer than I thought! Also updates on how the weaning process is going and an update on Camis new school! Make sure to check back in within the next few days I'm just too pooped out to Blog anymore today!
Posted by Karen at 1:49 PM

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Camerans Infantile Spasms:

I started this blog 7 years ago for my daughter Cameran(Cami) who was diagnosed with Infantile Spasms when she was 6months old. It was a very difficult time in our lives so I reached out here and found an amazing amount of support. Even though Cami has been seizure free for 5 years and has outgrown her I.S. I still post for others too see that there is
hope, these children can get better it just takes lots of patients and lots of love! Cami still has developement delays, she has Generalized Epilepsy and a new diagnosis of ADHD but I tell ya those things do not hold her back. She is an amazing little girl who surprises her mommy and daddy everyday!
~Welcome to our blog~ For any wanting info on her meds, epilepsy in general or any of Camerans medical equipment, I have it all listed below. If you have any questions feel free to e-mail me, Karen at jk98hayes3@att.net

Infantile Spasms

  • 1. What is Infantile Spasms, Click here!
  • 2. Infantile Spasm Communtiy
  • 3. Yahoo Support Group for I.S.

Caleb James

Caleb James
My Handsome lil man! 11 yrs old my Big 6th grader!

Cameran(Cami) Alyssa

Cameran(Cami) Alyssa
Daddys Girl, Mommy's Princess shes 7 yrs old now & attends a CDC 2nd grade!

Jayden Paige

Jayden Paige
At 3 years old she is our little clown, definetly full of herself!

Generalized Epilepsy, choose a link below!

  • 1. Epilepsies and their Symptoms
  • 2. More on Generalized Epilepsy
  • 3. Lists of Seizure Meds & their side effects
  • 4. Ketogenic Diet ~ A diet that can be used for Epilepsy

Meds currently on

  • Med free since June 09...HOORAY :)

Meds we tried:

  • 1. Zonegran (8/18/05 - 7/06)
  • 2. Predinsone (8/18/05 - 9/10/05)
  • 3. Keppra (10/05-10/07)
  • 4. B-6 (tried in 10/05 for few weeks didn't work)
  • 5. Klonopin (started 11/05 - 6/07)
  • 6. Topamax (12/22/05 - 2/4/07)
  • 7. Melatonin (6/06 - 7/06)Developed Mastitis so we had to stop
  • 8. Vigabtrin (7-11-06 - 10-7-06)
  • 9. ACTH ( 8-31-06 - 11/5/06)
  • 10. Ketogenic Diet ( 3/4/07- 5/4/07))
  • 11. Depakote (4/5/07- 6/15/09)
  • 12. Neurontin (5-6-08 for sleep)
  • 13. Ambien..(tried for 1 night for sleep...DID NOT work!)

Navigating the Storm Introduction!

Ive put up some new info for people interested in reading more about LGS. Cami does not have LGS but many that had Infantile Spasms develop this! So here is a site with lots of information. See below:



Navigating the Storm...Living with LGS!

  • LGS Introduction
  • Sleep Issues
  • Behavioral Challenges

My Friends: Read more stories of other children with Infantile Spasms!

  • JenABC
  • Broc-Has video of his sons I.S.
  • Madie
  • Dawson
  • Sophie
  • lily-bean
  • Miss Mira
  • Reagan
  • Madeleine
  • Matthew
  • Cody
  • Monty
  • Daphne
  • Kelly
  • Google News

Cami in her helmet

Cami in her helmet
Click on picture for company we purchased it from!

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About Me

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Karen
Tennessee
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My 3 monkeys

My 3 monkeys
Love them all so much!

Some of my favorites!

Some of my favorites!


~Our Family~

~Our Family~
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Click to join infantilespasms

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