Monday, December 31, 2007

Happy New Year

Wishing Everyone a.......

Things for the new year:
-We are awaiting Camis MRI appointment which is scheduled for Jan. 3rd to watch her lesion on her Cerebelum.
-February 7th Cami will turn 3 and will transition into a Special Needs Preschool, cant believe how fast she is growing up!
-In April she will be having her sleep study test....We are very anxious for this!
-Also on April 15th will mark her 1 YEAR of being Seizure Free!!!!!!

Heres a few pics of the kids from Christmas, they had a wonderful Holiday! Hope you all did as well!


Caleb with his new skating dog Blade!

Cami with her 1st baby stroller! She pushes this thing every where but does not know how to turn it around so once she runs into something she will just back up till she backs into something and then moves forward again till she finally gets turned around...Its the cutest!



Thursday, December 20, 2007

The results....

OK well its not really a full answer but it will have to do! After the 3 hour testing the Dr. came in and says I think she DOES have Autism but I CAN NOT diagnose her with it because of her seizure history! Now let me explain in more detail. For those who are not familiar with the testing they do let me try to describe what they did with her.

Me and Jason where in a small room with Cami with a Dr and an assistant, the main Dr observed through the window. Anyhow it consisted of lots of paper work for Jason and I questions from her eating habits, playing skills, fits, social skills and so forth. While we filled out paper work they did what seems like a simple enough test to kids but for Cami it was not so. First problem they ran into was just getting her to sit still in the chair it was unsuccessful she would not sit longer than 5 SECONDS tops, which for her is not unusual!!! After that fight they just decided to sit her in the floor and have her try to point to a picture. They had 4 different pics on a page and they would ask Cami where the ball was hoping she would point to it, well that was a no, and of course we knew she wouldn't and couldn't do it. Cameran at this time was highly frustrated just 15 minutes into the test she was already screaming at, kicking and hitting the women. So they moved on trying to get her to stack 2 blocks, we know she can do this but she refused to do it for them she picked up the blocks and threw them at the wall this went on for 5 minutes till they moved on. Next came pretend play and of course me and Jason was snickering because we knew what was fixing to happen. Well the woman took the lid off the big Tupperware box and of course Cami wanted to play with the lid but then got her looking in the box. They pulled out different Ziploc bags at a time....The 1st one was a car, airplane, frog and a cup. Cami look what I can do Vroom vrooom on the floor with the car your turn, well Cami took it in hand and ran it across the floor....Yay Cami good girl. Next this is a frog(bouncing it on the floor) boing boing....Camis turn Cami takes it and taps it to the floor a few times and then throws it...Good girl Cami. Next was the airplane.....she flys it in the air...Cami watches then she hands it to her and Cami just throws it(does that count... she made it fly...LOL) and last was a cup. She says look mmmmmmmmm that was a good drink, Does Cami want to try well Cami takes the cup and places it up to her ear she did this over and over.

Next bag she wanted her to pretend play a birthday party, with a baby, napkins, forks, straws for candles. The woman pretends to pass out plates Cami is just throwing them as she gets them and then the woman acts like she strikes a match and lights the candles and Cami reaches for it and she says that's hot don't touch...But Cameran continually tried to pull them out and place them in her mouth. She through Many fits in that session.

Next they just gave her a dump truck, blocks and a hard page book. Cami did put a few things in the truck and push it and then sat down and was looking at the little book flipping through the thick hard pages but while doing this she would keep situating herself until she was no longer facing us but she kept doing it in circles.

They tried many other things where she continued to throw a fit and hit, scream and kick so they just let her be and watch how she played. They just watched her move constantly about the room not playing with anything in particular just moving and destructing everything in sight. While she played alone they asked us another 100 question survey and they went out of the room for about 30 minutes. Then he came back in and gave us the above answers but also mentioned Sensory Disorders. We have been questioning this and after reading some notes from her OT we found out that they say Cameran stays in a constant Sensory seeking mode making it hard for her to concentrate. He definitely thinks she has Sensory issues and as of right now Autism but again cant diagnose her because he is wondering if things will change the more she is seizure free. So he wants to retest her in 1 year to give her time to make the changes if any. So we will just watch her and take in any info given and learn all we can to keep her ahead.

In a little over a month Cami will be turning 3 and will be entering in the Special Needs Preschool here in town, we are to observe another classroom to see how it goes and hopefully it goes well so she can receive all those great services!!!!

She has an upcoming MRI on Jan 3rd checking the lesion in her cerebellum and in April they have set up her Sleep Study! Uggghhhh....That's a long ways away but they said they are BOOKED! Guess we will have to figure out something to make this girl sleep better at night....Mommy and Daddy need their rest.

Tuesday, December 18, 2007

Christmas is almost here!

Well I finally got all my Christmas shopping done! I tell you I think there had to be a thousand people in one store with all the same thing in mind....Last minute Christmas shopping! We do it every year....Don't ask me why we just do! But I think next year I'm starting in July....The lines where ridiculous! We went out about 9am Saturday morning and everything was smooth sailing no waits hardly a crowd then came 12:00 you could not move in the same store you where in earlier that day! I will never price shop again just get it the 1st time you see it!~ Lesson learned!

Minus the crowds me and the hubby really enjoyed are half day out without the kids it doesn't happen often maybe once or twice a year if that....So it was great!

Caleb and Cami are really geared up for Christmas. Caleb especially since Cami really doesn't understand it all. She just likes to back up and sit on my tree and now that we have gifts under the tree she has showed in interest in ripping the paper off...Little stinker! We took them to see Santa 2 weekends ago and the look on Camis face was priceless....She was very wide eyed and full of giggles! She couldn't wait to go over to see him and lucky for us there was no wait we just walked right up! We let Caleb go 1st so he could give him his letter and let Santa read it so he made sure he understood it....LOL....Dont want to leave anything out! Then came Cami we sat her on his lap and she turned around and gave him the biggest smile then turned and let out a big giggle! It was the cutest.

Other news: We are heading to her next Psych test Wednesday the 19th...It takes 3 hours...Hope she tolerates it! We are leaning more towards Sensory Processing Disorder, she has lots of quirks and lots of sensory issues! So we will see. I will post as soon as we know something!

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Tuesday, December 04, 2007

Some new things!

Ok well I'm way behind and have lots to update everyone on!

First things first and that is her current med. Cami had blood draws for this a few weeks back and I got the results back. Her Depakote level was 130 its suppose to be around 100 so it was elevated. So they took immediate precautions and took her off 1 pill leaving her on 125mg 3x's daily instead of 4 a day. We are watching for any unusual behavior/seizures! So far nothing during the day but at night we are seeing some questionable stuff. Lots of jumping like she use to do when she had seizures in her sleep. BUT we have been noticing this behavior before the wean down, about a week ago is when is started. They are wanting to do a sleep study on her but not until after her Autism test and MRI. The Autism test is on the 7th and 19th of this month and the MRI is set for Jan. 3rd. So not to long to go. Until then I have a call into the Neuro about her sleeping issues. Which right now its terrible! She stays in such a light sleep all night tosses and turns whines....She just isn't getting the sleep she needs. Neither is Mom and Dad!!!!!

~On a more positive note! Cameran is really moving forward this past week. Let me sum it up in a nut shell! The past few weeks its like a door has opened up for her. I've been trying to teach her a new sign every week and she is finally catching on to it. The only thing is she want do her hands for the sign she comes over to me and signs my hands for what she wants. Which is still fantastic, she is communicating with us! Her new signs are "Open" and "On" and man does she use both alot!!!!!!
~Next is that my baby girl has been practicing and practicing on her jumping and I'm happy to say she finally got it on Sunday! She is now a great little jumper its the cutest! She gets a little caught up in it and starts squatting alot trying to remember how you do it and then she'll smile and hop up and start jumping again...We love it!
~This next one has been a working process but this past week she has really mastered the skill of throwing a ball. And cute thing is at PT they will put the ball in her hand and guiding her hand up and down they will count 1, 2. 3 and on 3 they throw it. Well yesterday she was coming to me with her ball in her hand hold it in the air then she would move my arm for 1,2,3 and then she would toss the ball that she had in her hand. It was the funniest thing!
~Babbling, oh my goodness what a little babler queen she has become lots of new sounds all the time. Still saying mamamamam, dadadadadada, bubububububu, today it was nananananana lots of growling and high pitched squeals as well.
~Mimic...THis she has just started within the past few days....She likes to smack her lips and then waits for you to do it back so she can do it again. She also coughs if she hears you do it. And then lastly the cutest is clapping her hands she will only do it if you do it. Funny thing is that when she started doing it was while we where watching Wheel of Fortune and every time the audience cheered she did the same and giggled! Its just the sweetest thing imaginable.

Well that's about it for now. I've been super busy with Cameran and Caleb. We are gearing up for the Holidays and trying to keep them well on top of that. Thankfully neither have been sick again since the Merry go round of Bronchitis and Viruses!!!!!

OK one more thing, if you see to your left I have put up a Tree and a Mistle Toe...Just for fun so join in and leave them a gift and some smooches!