Wow...what a great milestone she has reached, we are thrilled! She is just the sweetest thing and has quite the little personality! We have successfully weaned her off all meds this summer, leaving just the Depakote. What a difference less meds makes, she just seems more alive than ever......HAPPY!
I e-mailed her Neuro today to see where we go from here. His response was that she will have to remain on the Depakote until she has been seizure free for 2 years! She has a scheduled appointment with her Neuro next month for a follow up. At this appointment we will be setting up her next MRI. It will be set within the next 1-2 months...She has to have these yearly to watch a lesion she has in her Cerebellum, making sure it doesn't grow!
Other news: She continues to impress us weekly with new skills and new noises. She is a little hoot and has us laughing all the time at her silliness! See what I'm talking about in the photo below....Such a goof! For Halloween she is our little Princess Pirate and looks absolutely adorable in her costume.
Oh and dont let me forget my spookey little guy! Caleb decided he wanted to be a skeleton for Halloween he looked soooooo adorable! His costume glows in the dark it has a smiley face masks that matches but it broke and we had nothing to pin it up for the Halloween party....but you look super cute Caleb...I mean SPOOOKY!
And one of the 2 kiddos together!
Hope everyone is having a wonderful fall!
3 comments:
TRULY AWESOME!!! Long may it continue! I forgot she had a lesion...did you ever have a biopsy done? Austin ahs one too in his left temporal lobe. His biopsy showed it was scar tissue. Not that that answer was in any way helpful, but it did rule out tumor, tubor or anything else scary. The bipsy was actually an EASY surgery, MUSH better than I expect it to be!
They are too cute and I'm soooo proud and happy that Cameran is seizure free!!! YAY!!! The costumes are precious! Happy Halloween guys!! We love ya!!
Love, Tasha and Kelsey
arrgh matey...my little pirates (they play pirates on their swingset) may have to come capture your little pirate. We need a cute little girly up her :)
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