Monday, April 30, 2007
Follow your heart...
And lets just say that mine is telling me that the Ketogenic diet is not working! I have had all I can take of this diet, it is being kicked to the curb. We have been giving her little extra of the diet food here and there to see what would happen and you guessed it everything was fine. So this weekend we decided to give her some thin crust pizza, goldfish and some milk. All where fine no bad results yet. She hasnt been in ketosis for about a week! So I would say the diet is probably NOT what is keeping the seizures away. Which we are all pretty sure its the recently added Depakote.
I have not discussed me giving her extras or anything with the Dr..... which I hear some of you gasping but hey I'm tired of playing the waiting game 3 months here 6 months there. I'm tired of watching my baby girl starve, she is constatnly hungry and I have mentioned this quite often to the Dietician and nothing has been done. So lack of communication in that whole area just made me want to quit.
Not sure what the consequences will be if I do it on by own. Is it something that has to be weaned like a med or what? My biggest things is giving her the sweets which I have NOT done yet. I'll be e-mailing the Neuro here in a minute and let him no what I'm doing. But its time for us to take charge for once. Dont get me wrong I love our Neuro I just hate waiting when I know in my heart that it is not working! I mean I did however follow his request and kept raising her Depakote level until it reached 500mg even though she was seizure free on the 1st pill 125mg. Cant a mom have a say so sometime, you know when enough is enough!
I will however have to wait yet another 2 months before we can even think about taking away another med. Uggggghhhhhh.....I just would love to know how much she could really learn if she was just on 1 med for once in her life!!!!
Sorry to vent but gosh I really needed to get that out...Just a mom looking out for her baby girl!
Ok now own to something funny see pic below:
Ok this was so funny to me may not to some others...But this is pure talent right here! A girl who can suck her thumb and yet pick her nose with that very same hand all at the same time! I about fell over when she started doing this this weekend dont know why she started doing it, its funny but I hate that she is doing it. I mean Caleb in his whole 5.5 years of life has never not once picked his nose. So I guess it was just destiny that I would have one lil picker....LOL! I'm sure some of you parents know what I mean!