Camis Friday appt

Well all in all it was a great follow up at the Neurologist! He couldn't get over how great she looked. We are still waiting on her blood results for her Depakote levels. They also have set up her another MRI it should be in the next few months haven't got the exact date yet. But he doesn't think we should worry, since the lesion is in her cerebellum, he said if it was growing in size her balance would get way off a sure sign of growth. So no problems there because her balance has really improved alot. One other thing we discussed was her sleeping issues, she tosses and turns and wakes alot during the night so he is wanting to do a sleep study on her early next year and possibly put her on a sleeping med to help her get some much needed rest. The way he talked in my describing her sleeping pattern he thinks she is staying in a the light sleep and not the deep sleep. So we will see.

On another note.....We have had a doosie of the cold season already. The kids seem to be staying sick. Cami started running temp last Monday so we took her to the Dr where we found out she had Bronchitis. They gave her Antibiotics and it cleared out of here fast. Then that Thursday I was at Calebs school visiting for their Turkey day dinner and decided to spend the rest of the day out with him and he was just happy go lucky. Then it ended he got sick at school threw up everywhere. Yes you named it a virus....2 days later Cami gets it. That leads us to this week Caleb woke up at 1:30 this morning saying his belly hurt got sick then said his head was hurting really bad so I felt it sure enough he had temp. So I checked it and it was 102.6. So I gave him Motrin sent him back to bed he woke up again saying his head hurt another temp of 102.6 so I took him in to the Dr. today and sure enough he now has Bronchitis. I tell you its like a never ending cycle of sickness. The nurse there said the Dr wants to do a follow up next week and all I can think of is what in the world we are gonna pick up when we go back! Ugggghhhhh I really hate this time of year....Don't get me wrong I love the Holidays I just hate what this season brings! My poor baby's! Hopefully Caleb will be good to go come Saturday for our family gathering! All I can say is Thank goodness he is out of school and has plenty of time to rest!

Hope everyone else is staying well! Hope you have a wonderful Thanksgiving!!!!


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Happy Thanksgiving!

Wow we got lots to be Thankful for this year! No seizures and still going strong!

Sending our best to everyone this Thanksgiving. Have a safe and Happy Holiday!

Its been 7 months......

Since we have seen a seizure!
We are so happy for Cami. In 2 years she will be med free if all goes well! Keep going strong baby girl! We love you very much!
Heres one of my favorite pictures of Cami!


On another note I had posted about earlier this week about having her tested for Autism. Well we were fortunate, they had an opening and got her in for December testing. We where shocked because they originally had us down for the mid of June! So now she has one meeting on December 7th(the small test) and one December 19th for the big test! She will also be evaluated by her Neuro tomorrow. I'll update as soon as I can with that visit. We are actually heading out for one last camping trip this weekend before we tuck the camper away for the winter! We are so excited its gonna be a BEAUTIFUL weekend!

Just a small update

Sorry I havent posted in a while, I have just been super busy with Calebs school(Volunteering for 2 weeks) and staying busy with Cami as well! She is still throwing the fits mainly when we venture out but she will give you some doozies at home too so watch out! They have her on the waiting list to be evaluated for Autism said it could take 6-9 months...Ugghhh the dreadful waiting game! So I guess we wait bad thing is she will be 3 years old in 3 months so that means Early Intervention runs out so we are on are own the day of her Birthday! I've heard the test is very expensive so hopefully our insurance will cover it. She has a follow up Neuro appt this Friday so he will be evaluating her there and maybe we can get his thoughts on some weird things she does. I hope its just a stage thing but you never know. We are currently looking into her transitioning into A Special Needs Preschool and let me just say its not been fun! I will post about that whole subject when its not so late! I'll just say its a touchy subject in our household right now!
At her appt they will just be doing lab work for her Depakote levels just going over the past 7 months since we havent been in since then. They will also be setting up her MRI that she has to have done yearly I think he said he wanted to try and get it with in the next month!
I'll try and post about it all this coming weekend but no promises cause we are taking the camper out 1 more time this weekend before we put it up for the winter. We are excited, we went a couple of weeks ago and had a blast, Cami gave us a hard time but we made the best of it! Hope everyone is doing well!