Tuesday, June 02, 2009

Overdue Update.....

Sorry what can I say its been crazy busy around here. Whats been going on, well here is the latest. Cameran had to go to the Orthapedics where we waited a miserable 3 hours to get another X-ray of her arm, wait wait wait and more waiting saw the Dr. waited some more then she got recasted. This one being a full round arm cast. He was shocked she didnt do more damage to her arm in that splint she had on. Turned out being much worse than the hospital told us. They said it was large but small?????Confused well I was. SO when the new Dr told us just in fact how large it was it scared me a little. He said it broke all the way through her elbow and the only thing that held it from braking and needing surgery was the soft tissue surrounding her elbow......acckkk! He called it a Supracondylar Humerus Fracturehttp://www.gentili.net/fracture.asp?ID=24 and then showed us her x-rays where you could see the crack all the way through.....Pain I tell ya. Brought back lots of memories of my arm. But my gal did great while they casted her up and she got to pick a color so we went with a light pink cute cute she is in it. She has to wear it for 4 weeks then they will do another x-ray to see if it is ready to come off. I'll tell ya we really dont think it will that early but they say kids heal alot faster than adults so we shall see. Fingers crossed that it comes off....we are ready for some swimming! If she doesnt come out of it June 11th then we have found a cast cover that she can use so she can swim. Its called a Dry Prohttp://www.allegromedical.com/personal-care-c532/dry-pro-waterproof-cast-protector-p554950.html#ReadReviews

Speaking of swimming we have entered Caleb into swimming classes for the next 3 weeks. He goes for his level testing tonight to see what he knows. They will then put him in the level class he needs to be in. Super excited for my lil guy and he is thrilled to learn. Once Cami comes out of her cast she is being enrolled too!
School is now out and their summer break has officially begun. Cami unfortunately missed her whole last week of school she has had a bad cold. Its still hanging in there a lil bit but thankfully the temps are gone but not before she passed it to me. Nothing like a summer cold!

Now onto her EEG results. They came back with no seizure readings which was fantastic news so he gave us the go ahead to start the weaning of her Depakote. We are into week 2 and down to just 1 pill a day now!!!!! We arent seeing any odd behaviors, she seems to be tolerating it very well. Actually her speech is pickingup more and more everyday. Just this week she started saying hotdog(she calls it a dotdog) then today she is saying bellybutton as she discovered her belly and the hole.....LOL! She says what? What? pointing at it! Too cute my girl!

She will be done with the Depakote on June 15th. They have called in Diastat for backups. Its a med we would have to insert into her bottom if she where to have a seizure lasting more than 5 mintues and then are given instructions to seek ER help. We have been told to carry it everywhere we go just in case but he thinks things should be fine but its for a just in case you never know situation!

Other findings on her EEG where said to be very slow brain waves he said probably why we are seeing developmental issues. Also said her sleeping pattern was not what it should be and asked how she was sleeping! All things that will be covered at her next appt on the 18th of this month!

So that about sums it up. Im doing great had another appt last week at my 6 month check-up where I got a 3-D ultrasound of our lil sweet pea. It was so awesome to see the baby it was like he/she was here already! Speaking of they have given me an earlier arrival date of atleast the 10th of September because of my gestational diabetes. No surprise there though! So just 14 weeks to go but man its gonna drag by in this hot summer....iccckkk! There was a small finding on the ultrasound that I'll go over at a a later date maybe after my next ultrasound that they have scheduled at the end of this month. Its nothing too serious but something that is being watched. So we will see what the next appt shows.

Well I better get off here got diaper duty and a swimming class to get off too. Hope everyone is having a great summer break!


JSmith5780 said...

Poor Cami! Hope her arm is healing quick.

What a cute picture of baby. Hope everything turns out ok!

Jamie said...

:(!! ohhh this kid! I can only shake my head and kinda chuckle to myslef..she is such a trooper. All will be fine :)
Those Ultra Sound pics are sooo COOL! Im still goin with BOY! hee hee! thats my guess!
Hang in there Keep us nosey folks Posted!!

Jennybell said...

I hope you see continued improvement coming off the Depakote. It definately affected my daughter's speech and we weaned off it in May 2008 then went to Topamax which made her basically mute, emotionless and numb. Thankfully we're off it too! Only Keppra left and we're down to 200 mg 2x day. Should be completely off it in a few weeks! It's such a great feeling to take them off meds but so scary too! We have Diastat too and I carry it everywhere, but have never used it thank goodness!