Wednesday, November 15, 2006

Done with ACTH!!!!!!!!!!!!!!!!

So glad that the ACTH is finally gone! She has really done well since stopping it on Sunday. Unfortunaltely she is still having seizures, we where really hoping this med would work for her!

On a HUGE plus our little girl is back! She is full of smiles and even some occassional laughs! The babbling is slowly coming back along with her signing! Her eating has dropped significantly and she has already lost 3 pounds. Putting her at 32 pounds. I wonder how long it will take for it to come off?

She is just doing really well! I had mentioned last week of taking her to a new school and that only lasted for that day. The program was great but not for Cameran just too many people(students coming in and out for training) so not something that would one on one with her which she needs! I was so worried seing all the pointy toys just knowing that it could put her eye out or something! It all just made me very nervous!!!! They too agreed! So maybe once we get her seziures stopped we could give it another try.

Cameran will be weaned off another med soon to get her down to just 2 and eventually just 1 before starting a new med which is Lamictal. I don't have all the info on that yet just waiting a couple of weeks before starting anything weaning and such. We will not add another med while weaning these others unless her seizures get out of control, other wise it will probably be Christmas time there abouts when we start Lamictal! Options after that are Depakote.

We would love to have another seizure free Christmas again this year and this time it stay that way!!!!

Sending our love to everyone.....Happy Thanksgiving!

P.s. Mommy is doing well now, the Zoloft has really helped her get back to her old self again!


JSmith5780 said...

So glad to hear that Cameran is coming around after being off the ACTH. I am happy to hear that you are taking care of yourself as well. It's hard for us parents to admit that we need help when we are so busy focusing on our kids. We should be infalliable, but we aren't. Take care and I'll keep checking in.

jotcr2 said...

Cameran is looking a lot more alert, and happy. It is very exciting that she is starting to be able to show you happiness again.