What the Neuro had to say...

Well Cameran's appt went well yesterday although not much has changed. We are to stick with the Vigabtrin for atleast 6 more weeks and if still no changes we are to begin with the weaning and move on. He says we can go up on it 1 more notch being 750mg twice daily. Again there will NOT be another EEG unless things get better.

Another thing discussed was her sleeping and snoring. This raised concern when we told him how much she awakes during the night even though we are giving her Melatonin to help her sleep. So he had us raise it last night to 2mg to see if it helps and it did. We just hope it continues!

She also snores really loud so it raised a question to him of Sleep Apneia(sp??) so we are to do a sleep study in a month or so. He mentioned an EEG during a night's sleep to see if theres any activity that could be waking her up at night. These times she is waking up at night vary from 2-4 times a night and she gets all rowed up to play. So he wonders if this lack of sleep is playing roles in her daily seizures.

He also looked at her tonsuils since she has been doing this heaving breathing and holding breath that he picked up on while we where there. He says she doesn't have enormous tounsils but they are very large so maybe another possibility to all the snoring.

On another note they where very excited to hear her babbling. A great sign of moving in the right direction! She was letting it role while we where there it was too cute! You can't really make anything out its just really loud noises and lots of Yahhaeee Woohhooo Dayayas....if you understand any of that let me know : ) We love it!



Cameran's Neuro has many patients w/ IS and says her has been the most difficult.....Why???? He doesn't know! Thats what makes Infantile Spasms so hard to figure out since all the kids respond differently to the meds no matter how alike their cases are. Only one of his patients with IS has a reason to his(TS) and they recently got control with the Vigabtrin all the other patients(12) with IS with no cause are seizure free with some of the same meds we have tried. I just don't understand it! I so wish we could get these things stopped!

Cameran goes back on August 25th for her follow-up so we hope to have some great progress by then!

No change in seizures

So far there has been no changes with Camerans seizures but we are trying not to give up hope just yet. Early last week before starting the new med she was having 5-8 seizures a day and ocassionally have 11-15(depending on her sleep) now her seizures are staying in that number range(11-15) so that would be the only change.
What are the plans now????
Well her Neuro called yesterday to check in on her(he is the best) anyways he had me up her Vigabtrin today double of what she was taking. So now we are at 1000mg a day compared to 500mg. We are going to see her Neuro tomorrow, Friday so they can just go over things with us. We won't be having another EEG until her seizures stop! Which we hope will be soon!!! Today we have seen maybe 1 can't be for sure though it was a weird side ways head drop???

As far as the weaning of Zonegran goes, we are now at 50mg a day and she is doing fine.

Congratulations to Lil' Cam as today she graduated from her OT Feeding Class. Her teacher and I thought she has made great progress the past 3 weeks that they have just moved to her consult only! Whooo Hoo, GO Baby Girl!Oh almost forgot about her blood results. Everything came back fine, so who knows why she likes to hold her breath....for extra attention...Like she doesn't get enough of that already : )

Out with the OLD.... In with the NEW!

On Monday while waiting for her Vigabtrin to arrive our Neuro suggested to start with the weaning of one of her meds. So we opted for the Zonegran, this is the one we have been on since day one of seizures. We are very excited to get her off of something. She hasn't had any withdrawls so far. We will bring the dose down 25mg every 4-5 days until she is completely off of it. Right now we are just down to 100mg, Friday we will be down to 75mg. We are really hoping things will open up as we think some of these meds are holding back her development.
Come Tuesday afternoon we where very excited that her New med, Sabril/Vigabtrin had arrived in the mail. Not bad after coming from England, it took eleven days to ship.
WE started it this morning, (Wednesday the 12th) and so far so good. I saw 1 seziure this morning before I gave it to her and thats it. We are keeping our fingers crossed and doing some heavy praying that this is the one!!!! Well I must have jinksed it she just had 3 head drops : ( It Never fails!

I took her to the Dr. yesterday for a bad runny nose and she has a Summer Cold putting a hold on her classes until she gets well. But we had also raised a concern of her heavy breathing and breath holding spells she started about 5 -6 weeks ago when we upped her Topamax again. I read this is a more serious side effect. Her Pediatrician timed her breath holding it was 15 seconds! We feel like we can't breath sometimes when she does it. Its an all day thing and is scary. So our Neuro e-mailed me requesting us to go have her blood drawn - A Complete Metabolic Profile drawn. It measures the chemistry in the body including Bicarbonate, which is the concern. So we will be doing that tomorrow! So check back soon for updates on how she is doing and the test results! Also we go back to Nashville in a few weeks to have another EEG if the seizures stop with this new medicine!

Ordering a new med!

We are in the beginning process of ordering Sabril Vigabatrin. It has to be ordered from Canada as it is not offered here yet due too a side effect of Periphal Vision Loss. Our Neuro says it will soon be available in the US in about a year.... so we all hope, until then its full price out of our pocket. It will take about 2-3 weeks for delievery so when it comes in we will schedule her next appt and go in for instructions.
We are very excited about trying something new it has been 6 months since we tried anything else, just been doing some adjustments here and there and none seem to be working. We have gained much grounds with the seizures she is down to a handful a day. So our plans are to start this new med once its in, wait a few weeks to see what happens, if good results we will begin the weaning of her other meds. Not sure how many though I guess what ever combo works!

Cameran has been doing some new things such as clapping and signing for "more". She also does the cutest little dance when she gets excited(see photo to right, she was caught in action), she does this bowing and a jump(almost) and waves her arms around its hilarious. Its definetly a must see type of deal!!

Still no talking we thought she was starting to then it stopped. Its so frusterating because you never know what we will wake up to, one day she will babble then the next day it will be gone but she will sign for you and vice versa.
You win some you lose some thats the story of our lives but she's happy and thats all that matters!

Cameran had her casting for her feet today! It went ok she did not want to sit still so we had to do her left foot twice. Poor girl didn't know we had such a wiggle worm! They said her ankles looked pretty bad and are making lots of crackling sounds. She walks on the insides of her feet causing her ankles to bow out on the insides instead of the outside like they are suppose to. So we hope with the inserts it will help put things back like they are suppose to and help her with her balance. People keep asking me if she just learned how to walk and of course I say no she has been walking just over 6 months now. Weird to think its been that long!

POOR BABY GIRL.....She has a sore mouth! On top of her purple busted lip from a face first seizure into the floor she is getting more teeth! Her 1 year molars at that.....OUCH! She has 2 of them making a total of 14 teeth, WOW!
Well here is some info about the new med if anyone wants to read up on it, I pull all my info from epilepsy.com if you want to see more:
Introduction to Sabril
Sabril (SAY-bril) is a brand name used by Aventis for its seizure medicine. The generic name is vigabatrin (vi-GAY-buh-trin). This medication has not been approved by the Food and Drug Administration (FDA) in the United States, but it has been available in other countries for many years. Sabril was developed by a research laboratory in France in 1977. Unlike many other seizure medicines, which are discovered by accident, it was purposely developed with a specific plan in mind—preventing the breakdown of GABA, a neurotransmitter that inhibits brain activity. Sabril was first marketed in Europe in the late 1980s and was approved in Australia in 1993 and in Canada in 1994.
In April, 2004, Ovation Pharmaceuticals announced that it had arranged to buy the North American rights to Sabril and planned to try to get FDA approval for sale in the United States. This process is likely to take 2 to 3 years, however.
Unfortunately, as many as 25% of patients who take it for a long time suffer damage to the retina of the eye, which limits their field of vision. Because of this safety issue, the FDA has refused to approve Sabril, and its use has been restricted in some other countries.
How well does Sabril work?
Sabril (vigabatrin), although not officially approved in the United States because of concerns about vision problems, is useful in controlling partial seizures and some other specific seizure types. Many randomized controlled studies in both Europe and the United States have confirmed this effectiveness, which appears to continue for most patients during long-term treatment.
Studies of children with partial epilepsy have had results similar to the studies of adults.
In one American study, various doses of Sabril were given as add-on therapy to 174 people who had complex partial seizures (with or without secondary generalization) that were not well controlled by other seizure medicines. About half of the people who took 3 grams or more of Sabril per day had at least 50% fewer seizures.
A similar study using 3 grams per day of Sabril reported that 43% of patients had at least a 50% reduction in seizure frequency, compared to 19% of those who took a placebo in addition to their other medication. There were few problems with side effects.
A few studies have compared Sabril with carbamazepine (Tegretol or Carbatrol) used alone to treat patients with newly diagnosed partial seizures. Most have concluded that carbamazepine is more effective for this purpose but fewer patients from the Sabril group drop out because of side effects.
Sabril also may be effective in treating infantile spasms specially those related to cerebral malformations or tuberous sclerosis, with fewer side effects than other treatments such as ACTH.
Sabril appears to be ineffective in controlling primary generalized seizures, including absence seizures and myoclonic seizures. Most studies have had poor results using it for Lennox-Gastaut syndrome, especially if myoclonic seizures are prominent.

The Results Are In!

The blood results are in and it shows that she is tolerating all the meds well. The medicines are all showing to be in the LOW range meaning we can go up in doses to see if this helps with the remaining seizures she is having. We are upping the Topamax 1st since it seems to have helped her seizures the most(went 4.5 weeks sf when started the Topamax) we have had feeding issues since starting the Topamax but what Toddler dosen't!! She still takes Feeding OT once a week so maybe we can keep her ahead of the game! On the Topamax we are adding 15 mg at her night time dosage this will put her at 95mg a day. He says we can go to about 100. Her current meds and doses are:
-Topamax -95mg a day- (1- 25mg&15mg in a.m. AND 1-25mg& 2-15mg in p.m.)
-Klonopin- .25mg dissolving tabs 4 pills a day
-Zonegran- 125mg a day- (2-25mg in a.m. and 3- 25mg in p.m.)
-Keppra- 2ml 2x's a day
-Melatonin- 1mg at bedtime for sleep what a lifesaver!!!
Her sleeping was way off waking about every hour at night time I was exhausted. I mentioned this to her Neuro and he told us to give her Melatonin-over the counter, all natural, its something your body already produces, it has really helped out. She has always had seizures in her sleep that would wake her up (in the very 1st months of IS) so he thinks this is still happening. He also thought that this could be a cause to her exsisting few seizures she was having in the day due to the lack of sleep. Although she is sleeping better now she is still having about 3-9 seizures a day. I don't know where I would be without this sleeping med now mommy and little Cam can finally get some much needed rest :)




Check out our little Monkey......

Cameran's new thing is climbing and there is NOTHING she can't get too!!! A few things we have pulled her off are the recliner that you see to the left she just smiles ear to ear when she gets up there, end tables, baskets, couch, kitchen chairs, toilet seat, activity table, brothers little chairs, tricycle seat and the drawer under the stove trying to reach things on top of the stove.....Watch out! She mastered the stairs so it called for a gate now she sticks her hand through there fussing because she can't get to it! She is such a little handful!!!!!

Here's some more photos of her caught in action:

She is one little determined baby girl! She knows what she wants and goes for it, she has no fear! Once she accomplishes her goal of climbing she doesn't know where to go from there and just steps right off the object only to get back up there and do it again! SILLY GIRL ;-0
Did I mention how much I LOVE my BIG BUBBY! You can always catch them hugging and wrestling in the floor its the sweetest. Cameran will follow that boy to the end of the world and back and Caleb would carry her if she got tired, they are best friends! Caleb tells me all day "I love this baby girl, she's my best friend" He is the only one that can really get her to laughing its adorable, they both just melt my heart!!!!

To be continued....

Cameran had her appt today with the Neuro so heres the latest: We had her blood drawn to check her levels with all the current meds she is on to see how she is tolerating them - to high to low. If things are ok we will raise probably the Topamax since thats what we are having the most luck with so far minus the feeding issues. We will get the results back in 2 weeks and with that we will decide what comes next. He has given us our options to think on. Her Neuro "Resident" is really pushing the ACTH route but we have decided that is a no go for now and a few of the Dr.'s up there agree. He says one Dr. use to offer ACTH but hasn't done so in 11 years due to the side effects and we are on the same page. Neuro Dr. "C"(our main Neuro) says it would be good to use if things started to get out of control but that there are no guarantees with ACTH and that some patients had no luck with it at all. He says everyone metabolizes meds different so there are no two people the same so therefore no gurantees and no right or wrong way going about the med choice it has to be what we are comfortable with! And we decided its just not the med for her, we are up for the Vig. since her eyes have already been checked and everything is fine there so if something was to come about we would know it was from the med. Right now things are calm she had only 4 seizures today which is wonderful so we are definetly heading in the right direction. They don't want to leave things the way they are so something will be done when we get the labs back. Right now the girl is knocked out after they told us to give her Melatonin to help her sleep at night since she wakes just about every hour during the middle of the night hopefully with this med it means sleep for mom too : ). Cam she is getting so BIG and grown up looking! Cameran is on a learning curve and is babbling in sentences of course you can't understand it at all but its cute! She is climbing stairs, chairs, stools everything she can hike her leg up on so we are watching her closely! Its just amazing on how much she has started doing since we got back from Florida!!!! She has started looking for hidden objects and exploring toys more and can you believe it she has been sitting still for longer periods.....WOW thought that would never happen as you all know what a wiggle worm she is, its just been a great few weeks!

As for the seizures they have been staying in the 5-10 range so they have definetly gone down in numbers! Her Neuro wanted to put her in the hospital last Wednesday to start the ACTH and we decided to not go with that mainly because of the harsh side effects:Potential side effects include-Hormonal therapy with ACTH or corticosteroids may have significant, potentially fatal, side effects. While weight gain and cushingoid features are among the most common side effects, ACTH or corticosteroids may also produce hypertension, metabolic abnormalities, severe irritability, osteoporosis, sepsis, and congestive heart failure.- (E-mailed from our Dr.)We just don't think she is that bad off to put her in that big of a risk of other things, maybe this would have been good in the beginning of things when she was having 158 seizures a day but not with just having 5-10 a day. We are to discuss what we are going to do, SO TO BE CONTINUED........ Cameran is still taking weekly OT feeding sessions as she refuses to eat sometimes. Its a back and forth ordeal as she eats FANTASTIC on some days trying out table foods, drinking 30 ounces of milk a day and eating lots of snacks. But then the next day will be the total opposite and will take no table food, no jar food and maybe about 15 ounces of milk.... It's all so strange. So of course this is making her weight go up and down she is at 21.4 pounds right now but last week she was up to 22.6 atleast we made it past the 18 pound mark as she stayed that weight from 6 months of age to 13 months of age!!! We are trying different varietys of snacks and different texture foods since she has a sensitivity in that area so far so good you can see her above trying out lots of different things at once! The hard part is trying to open her mouth to atleast try something new.....She is so stubborn! A new thing she is doing is drinking out of a straw, we have tried so many sippy cups and found that she will only take straw cups so we hope to have her off the bottle soon....But she is moving at snails pace on that one.Camerans new favorite thing to do is playing in the rocks!! She will put a few rocks in her mouth but Some other news is that she has managed to get 3 new teeth -in a 3 week period Poor baby girl it was actually a tooth a week OUCH! She is working on number 4 making it a total of 12 chompers :-)

Waiting for a reply....

Nothing new really going on! Cameran is still having about 10-15 head drops a day but they are harder like the ones in the very beginning! Today they where so hard if she was walking she would go face first into the floor.
Our Neuro has given us a few options to think about while we where gone on vacation they include ACTH or Vigabatrin. We're not sure what to do just yet. So we are trying to pull info on both to see what would be best. We did go back on the Keppra and we didn't see any changes so that will be weaned out yet again. Hopefully I will hear from the Neuro tomorrow and have more info to give. She goes back to Vanderbilt for a follow up on May 26th we will be having another EEG and MRI this summer some time!
Cameran had a great vacation in Orlando even though she slept through most of it. We ended up getting a pass to use her stroller as a wheelchair since she was snoozing so much- due to the upped notch of Klonopin we started right before we left. Poor baby girl all these meds really wear her out!

She has been babbling up a storm saying Dadadadadadada yayayayayya bababbaba shshshshsh all kinds of stuff that makes no sense but its great to hear her sing!!!! She also got a new tooth making #9 , she also loves to give hugs we just love all these new things and hope they keep coming!!!!To see more vacation photos go to kodakgallery.com

8th Month and still having daily seizures!

Its hard to believe it has been 8 months since she was dx w/ IS and it's so frusterating to see these things still hanging in there. The seizures change day to day which makes it that much harder to figure out what to do. We have upped all her meds and are now adding the Keppra back on to see if this was what caused the increase of her seizures, if not we will be making a big change since all these meds are wearing off.

Cameran had her 4th EEG on Friday the 14th and she did great. She was upset in the beginning from being held down but konked out as soon as I held her. She looked so cute with the "Mummy Head Band"!

Cameran's EEG was shown to be worse with the Hyps back but not as bad as in the beginning. This was not surprise news since she was having seizures again. Here she is being a good girl as they pulled the electrodes out!

Check out her crazy hair do......That glue is so hard to get out of her hair! It gets harder and harder to get her through these EEG's she does great and doesn't cry and scream like most of their kids but she doesn't like to be held down but who does??? This was her 4th EEG and won't be her last as they schedule one every time we add another med or wean one off just to watch things!

Cameran with her 2 wonderful Neuro's! The one to the right(blue shirt) is the one who dx Cameran in the ER. There plans for her is to have another EEG and MRI this summer. Until then we are adding back the Keppra to see what happens if no changes we will be moving on. They say that she will probably just outgrow IS but can't say that for sure since no one seems to know much about Infantile Spasms and how it works thats what makes it all so hard! So we will continue with the search of the right med for Cameran and hope when we find it that she will catch up in her development. As far as her Development goes its still a working process and probably will be until the seizures stop! Her balance has been thrown way off balance since her meds have been raised and all we can do is sit back and wait to see what happens in the next few weeks! We are still waiting for the insurance to approve for her brace inserts(AFO's) so hoping we can get them soon to see if they help any with her balance since she walks on the insides of her feet. Her PT and OT are moving slowly since she doesn't understand how things work . Its scary having a 14 month old walking around with a 3-6 month old mind she gets into everything and eats everything little billy goat! Her feeding classes are going so well she want have them much longer she has managed to gain 2.5 pounds since starting them about 2 months ago. She still has issues but with moms help she will be fine. Cameran still will not give up the bottle and absolutely refuses a sippy cup of any kind along with juice! She is a stubborn little girl!Above she is wet from playing with her new water table that her and her brother got for Easter. Thought she might like it since she has been caught several times playing in the toilet -YUCK-

Increased Seizures... Incresed Meds....

Yummy Sucker..... This was Cameran's ist sucker and she loved it......But what a sticky mess it made ;-0
We have been doing some alterations on Camerans medicines trying to add more mg to get better results and so far no changes. About 2 weeks ago we upped her Zonegran to an extra 25 mg totaling 125mg a day that didn't work so we upped her Klonopin to another .25mg totaling it to .75mg a day it too has shown not to work. Everyday her seizures have just increased more frequently and in intensity!
So what we are trying now is upping the Topamax another 15mg equaling it out to 65mg a day, we will see how this goes, she starts it tomorrow night. If this dose doesn't work we have room to grow so we will go that route until reached full dosage to see what happens if she shows to not tolerate the increase we will have to back off and try a new med. This will be Vigabatrin! She has her 4th EEG on the 14th and results to follow and we will discuss the ordering process and where to go from there.
These 3 meds is all that she is currently on: Zonegran, Klonopin and Topamax.

I love my new Fridge Farm.... Cameran totes this thing everywhere its her favorite toy right now!! Its the cutest and best learning toy of animals and their sounds! Gotta love Leap Frog.

Check out Baby Girls Belly... The girl is enjoying her food and on this night she ate so much she was having problems breathing, she didn't know when to stop.... And actually when I put her down from her chair she was trying to eat food she dropped on the floor. Her belly was so swole and she grunted every time she bent over it was so funny :-)
She actually has been doing so well that yesterday after eating class they thought they would weigh her and she has gained a pound making her weigh 20.6 pounds!! WooHoo Cameran, we just hope the upped Topamax doesn't ruin all this progress she has made!

Cameran and her Big Bubby Caleb.... They are loving this Spring weather!!!!

Whats for Homework?

We have been through quite a week with the seizures going up and down. Right now they are staying in the 15-30 range. We upped her Zonegran Friday night to another 25mg making a total of 125mg a day. We haven't seen any changes with her seizures so we called her Neuro today as requested and we are awaiting his reply as what do we do next. I'm pretty sure we are just going to go up on the Topamax as she can go up another 50mg making a total of 100mg a day. If you don't remember this is the med that we started in December that we have had so many problems with as far as her eating goes. It took us 8 weeks to finally get her to start taking foods again so we are hoping with this increase this doesn't happen yet again! But right now its either the harsh side effect meds or this so we are chosing this while we await her EEG in April. The Topamax is the one that she became seizure free on for 4.5 weeks so we are hoping for some good results! We are just so worried of the eating issues! She has her feeding classes(OT) every Thursday morn at 9:00am with "Special Kids" so hopefully we can stay on top of it! (See what they have us doing below)

On another note she had her 1st Physical Therapy on Tuesday and they will be now requesting her to be seen once a week. Her balance is off and they noticed she walks on the insides of her feet(puts all weight on her ankles and inwards) and drags her feet causing her feet to split and have caluses on her big toe and on the sides of that part of her feet. So they will be casting her feet there and sending off for the brace supports to fit down in her shoes to give her better ankle support. They think this is why she is so off balance. They will also be working with her climbing, kneeling,(doesn't do either) and her attention span for one item as she can't seem to stay focused on any one object. They say how do you keep up with her since she just walks everywhere and doesn't stay still -she did this while there with PT.(I just keep all the doors closed and let her rome around) but they say she just seems so overwhelmed by things that she doesn't know what to do but walk.. walk.. walk......She is a busy little girl thats for sure! Our homework is to show her to climb up and down stairs and let her walk on uneven surfaces to build up that tone. Our backyard is the perfect place for that but if only we could get some warm weather to be able to go out, doesn't feel much like Spring right now!!!

Ok now here is some pics of Cameran experiementing with foods, another homework assingment from her feeding OT. Messes drive me nuts but Cameran doesn't mind it so much. We are suppose to let her play in her food so she can get the feel of things and try different textures as she has a sensitivity in that area. Here she is playing in yogurt and graham crackers the goal is trying to get her to dip the cracker in the yogurt and eat off that. So far she doesn't understand it but with a little help from Mommy she is slowly starting to understand the concept. She is doing great feeding herself the fruit puffs which she LOVES....
Check out her face she really didn't know what to think... The yogurt was cold but will wake her little mouth up and we hope she will soon start talking/babbling more! They told us to try her on Lemon Ice that it should really Wake her mouth up...I'm sure with a sour face too! ;-0

*I will be adding some more photos and info but this site is not working right so I'll try again later!!!!

We are in for some changes...

Cameran is finally over her pnemonia but still has a slight cough but her Pediatrican said that she can hang on to it for atleast a month. But she doesn't act like it bothers her as before she coughed all day! Her seizures are still staying up around 15 and are back in clusters again so we are changing some meds around. Her Neuro gave us a few options: upping her Zonegran another 25mg or trying one of these 2 meds Vigabtrin or Depakote. So I looked both up and we decided NOT to go with the Depakote as it has terrible side effects of Liver failure (more of a chance of this if under 2 yrs of age) or damage done to the pancreas, bone loss(long term of taking), hair loss, tremors of hands or other parts of the body, upset tummy and vomiting and some other mild effects of drowsiness and such ! Its just not something we are ready for! We hate having to make these decisions its just so scary to put her in this type of situation with these risky meds but too we don't want the seizures to continue as they can just cause more damage! So the Vigabtrin is what we are considering but it will cost as its not FDA approved so it has to be payed out of our pocket and its gonna be about $150 or so a month depending on her dosage. This is one of the 1st line meds used for Infantile Spasms its just harder to get here since its not offered mainly because of the side effect of Periphal Vision loss. But our Neuro says it should be offered in the US soon until then it would have to be ordered from Canada.
So right now he is looking into the dosage of the Vigabtrin for her weight so we know what we are up against. Until that is started we have decided to go up on the Zonegran another 25mg at night to see if this will help. We were unsure of doing this since she is already at the max dose for her weight but he says sometimes it calls for it so we will see, she starts it tomorrow!

Cameran had her 2nd hearing test on Monday and it is still showing the same results of her inner ear not responding like it should they say it should spike up and hers stays with a slight hump. The booth room test she did was ok 20 and below is normal and when she called her name in a normal tone she would respond putting her at a 15 which is good but with low noises it was at 40-50 so they say she is showing some signs of hearing loss but can't be to sure. So they have her scheduled to be seen every 3 months until we get an accurate reading since she is so busy and can't sit still! Her next scheduled one is June 12th where they want her to sleep for the first half and be awake for the room test.
Her eye test was on Tuesday in Nashville and she did great they dilated her eyes(this made her mad but just for a minute) and then he took a look and they said her eyes looked perfect so no worries there which is fantastic news!!!
Cameran starts Physical Therapy on the 21st and her feeding classes(OT) start on this Thursday at 9:00 both with Special Kids. So we will keep you updated on how things are going!!! (She was enjoying the outdoors the other day and decided to lay down in the grass and prop her legs up and just watch daddy and her big bubby fly kites!)